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It is critical that Neurofibromatosis be managed by an experienced NF clinical team. Clinicians with limited experience can also partner with experienced NF practitioners. See NF Clinical Care Options to see how.
Newsletter Signup
NF Central Plains wants to keep you iNFormed. One of the ways we do that is through regular newsletters that feature information about educational programs, social events, research updates and advocacy efforts. Join our email list to read current and past newsletters.
Research News
In its newsletters, NF Central Plains includes clinical trial updates and opportunities to participate in research studies. The NF Network also has a rich supply of news including new and emerging research into NF.
Anyone considering participating in a clinical trial should discuss the matter with his or her physician. NF Central Plains does not endorse or recommend any particular study. If you or a loved one is interested in participating in NF research, please click here to read our clinical trials brochure and learn more about the process.
Upcoming Events
Apr 29Wednesday 12PM 1PM
A Cuppa Joe with Joe
- Colorado
- Kansas
- Missouri
- Nebraska
- Oklahoma
- Virtual
NF1 plexiform neurofibromas in adults: a closer look at Koselugo (selumetinib)
May 3Sunday 11AM 2PM
Colorado Social Event
- Colorado
- Denver
Join us as we celebrate NF Awareness Month together as one community.
May 13Wednesday 12PM 1PM
A Cuppa Joe with Joe
- Colorado
- Kansas
- Missouri
- Nebraska
- Oklahoma
Productive conversations with healthcare providers
May 27Wednesday 12PM 1PM
A Cuppa Joe with Joe
- Colorado
- Kansas
- Nebraska
- Oklahoma
- Virtual
Advocating for you child
