Finances should never be a barrier to participating in our events. Contact NF Central Plains at nfcentralplains@gmail.com to inquire about need-based assistance.
Upcoming Events
Apr 29Wednesday 12PM 1PM
NF1 plexiform neurofibromas in adults: a closer look at Koselugo (selumetinib)
May 3Sunday 11AM 2PM
Join us as we celebrate NF Awareness Month together as one community.
May 13Wednesday 12PM 1PM
Productive conversations with healthcare providers
May 27Wednesday 12PM 1PM
Advocating for you child
Past Events
Mar 72026
The Road to Adult Care
The Wave at 106
The move from pediatric to adult care can be challenging, but practical tools are available. Join us as those “in the know” guide us on how to make this transition as seamless as possible.
See PDF below for more information.
Nov 222025
A Time to Make Nebraska Friends
Virtual Event
Are you interested in meeting other Nebraskans in our NE community? Join us for a virtual chat on Zoom. We’ll tell our stories, share some tips, and make connections. A parent on our NF Central Plains board will offer resources and support.
Mar 292025
Kansas City Social Event: Fowling!
Fowling Warehouse
Join us at this casual sports bar for a unique combination of football, bowling, and shuffleboard.
Jun 12024
#NFStrong 5K Walk 2024
Macken Park
NF Network and NF Central Plains are excited to be back in person for one of our favorite events: the #NFStrong 5K in Kansas City, MO! Besides walking as a group, participants will enjoy face painting, a music trivia contest, hula hoop competition, and a silent auction.